ALD Life is a small independent charity working to support patients and families affected by Adrenoleukodystrophy (ALD) – a rare genetic disorder that renders healthy young boys into a semi-vegetative state within a matter of months. At present, there isn’t a cure for the disorder and death usually occurs within a few years.
In 2001, Alex Hunt, from East Dulwich, was diagnosed with ALD aged 7. While caring for her son, Sara, Alex’s mother, found it difficult to get the appropriate level of information, support or advice to help her care for Alex. So she decided to set-up a charity, so that other families going through the same circumstances would have a source of practical information, support and advice.
We currently provide emotional and financial support through a helpline and grants programme and practical information leaflets to help families make informed decisions about their son’s health and social care needs. We also fund medical research projects looking into finding a cure for the disorder.
During the recent recession, we have been finding it difficult to acquire the appropriate level of funds to continue supporting families. That’s why we decided to open a charity shop – to help us become more self-sustaining. Currently, we have three successful charity shops in Penge, Sydenham and Forest Hill.
Last year, Alex unfortunately passed away aged 19. He was one of the few lucky ones to have survived for more than a decade with the disorder. To commemorate Alex’s life, we will be opening up our fourth charity shop in Peckham High Street.
The shop will be the heart of recycling craft project, aiming to get people in the local community together to recycle unsalable items into craft goods people can use.
Please bring down any of your unwanted items of any quality such as books, clothes, furniture, CDs, DVDs and much more. Your donations will help to make a huge difference to families affected by ALD.
Address: 45 Peckham High Street, London SE15 5EB
Opening: 23rd September 2013